A young girl with a debilitating lung disease known as cystic fibrosis is finally running around freely again because of what her mother is calling a “miracle drug”.
7-year-old Harriet Corr has cystic fibrosis also known as CR and has had to bear with the pain of coughing episodes and a debilitated immune system for her entire life. CR is a condition that disturbs the body’s capacity to deliver specific fluids, and for various reasons, this results in practically unending bacterial infections in the lungs and can additionally lead to metabolic issues like diabetes.
With her wellbeing declining, Harriet’s mother Emma Corr campaigned for a considerable length of time – 7 years to be exact – for her daughter to be given the medication Orkambi which is accessible in the US. Corr collaborated with a gathering of parents whose kids have CR to lobby the government to get the medication accessible on the NHS. Orkambi was made accessible in October 2019 and afterward another medication, Kaftrio, was likewise approved in February 2022.
Orkambi didn’t have much of an effect on Harriet’s condition, however, when she began taking Kaftrio in February 2022, there was an “overnight” change in her health. Presently, the student is ready to run around and keep up in activities with other children her age, she has put on weight, and is no longer suffering drawn-out cough episodes.
Thank you Lord!!!
‘Miracle’ Drug Has Young Girl Running Dancing and Swimming Again Despite Cystic Fibrosis https://t.co/nEatYuMVwW
— Constantine Angyridis (@CAngyridis) September 29, 2022
“It’s not an exaggeration to say I didn’t sleep for the first seven years of Harriet’s life,” said Corr, from Tyne and Wear in the north of England. “I would sit up all night by her side as she would cough. Campaigning to get the drugs available on the NHS is what pushed me through as I would email MPs throughout the night. I get scared speaking about it in case I jinx it, but it is absolutely amazing to see how far Harriet has come from this time last year.”
CR is diagnosed pretty early on in life, but it is so serious that a few specialists think of it as a protocol to guide parents to prepare themselves for their child or children to die young – at times even before 10 years old. In August of 2021, Harriet’s health was at an all-time low, however, since beginning the Kaftrio drug, Harriet’s well-being changed overnight.
“She coughed for 10 minutes and then never coughed again,” said Corr. “Harriet is now like a new little girl, looking back at photos the transformation is phenomenal.”
Her older sister, Nancy loves having her sister back as she used to miss her when she was hospitalized for extensive periods of time. Before beginning the treatment, even a common virus could bring about a clinic visit however presently she can battle sicknesses like any other individual.
“She can sleep through the night and her older sister is so happy to have her little sister back,” said, Corr. “She’s a really big fun character and loves to be the center of attention. She used to struggle with her coughing whilst dancing, swimming, and playing football but now nothing is holding her back.”
This story syndicated with permission from My Faith News